PeninsulaCF was formed when a
parent of a child, newly diagnosed with Cystic
Fibrosis, was discussing issues surrounding the treatment
of the disease with the Coordinator of the Torbay Health Authority
CF Team.
They realised that the pace of development in the treatment of CF is not being matched by the funding available from the local health authority. New equipment is needed to allow the patients a better standard of living. As always this equipment costs money.
Raising this money is the aim of PeninsulaCF. The funds that we raise will help individuals with ongoing treatments to make daily life a little easier. For example, to provide equipment to enable patients to receive treatment at home, rather than being hospitalised and equipment such as trampolines and bikes, because keeping physically fit is vital for maintaining lung function.
They realised that the pace of development in the treatment of CF is not being matched by the funding available from the local health authority. New equipment is needed to allow the patients a better standard of living. As always this equipment costs money.
Raising this money is the aim of PeninsulaCF. The funds that we raise will help individuals with ongoing treatments to make daily life a little easier. For example, to provide equipment to enable patients to receive treatment at home, rather than being hospitalised and equipment such as trampolines and bikes, because keeping physically fit is vital for maintaining lung function.
We also aim to eventually fund research and to
generally raise the awareness of Cystic Fibrosis in our
Community.
Cystic Fibrosis is a genetic disease that affects a number of organs in the body (especially the lungs and pancreas) by clogging them with thick, sticky mucus.
Cystic Fibrosis is the UK's most common life-threatening, inherited disease and affects more than 7500 babies, children and young adults. Symptoms include poor weight gain, troublesome coughs & repeated chest infections.
These symptoms generally require ongoing treatment with preventative antibiotics, daily physiotherapy and a high calorie diet.
At present there is no cure for CF, but the faulty gene has been identified and doctors and scientists are working to find ways of repairing or replacing it.
People with CF are living longer than ever before. Until the 1930s, the life expectancy of a baby with CF was only a few months. Today the average life expectancy for someone with CF is around 31 years.
With this in mind, we hope you can help us reach our aims.
Registered Charity No.1113170
Cystic Fibrosis is a genetic disease that affects a number of organs in the body (especially the lungs and pancreas) by clogging them with thick, sticky mucus.
Cystic Fibrosis is the UK's most common life-threatening, inherited disease and affects more than 7500 babies, children and young adults. Symptoms include poor weight gain, troublesome coughs & repeated chest infections.
These symptoms generally require ongoing treatment with preventative antibiotics, daily physiotherapy and a high calorie diet.
At present there is no cure for CF, but the faulty gene has been identified and doctors and scientists are working to find ways of repairing or replacing it.
People with CF are living longer than ever before. Until the 1930s, the life expectancy of a baby with CF was only a few months. Today the average life expectancy for someone with CF is around 31 years.
With this in mind, we hope you can help us reach our aims.
Registered Charity No.1113170
Serieculture & T Bar present
The vinyl auction. A percentage of proceeds to come to Peninsula CF. Details coming soon
Contact
tbar@tbarlondon.com
Address
T Bar Lounge
18 — 22 Houndsditch
Aldgate
London EC3A 7LP
The vinyl auction. A percentage of proceeds to come to Peninsula CF. Details coming soon
Contact
tbar@tbarlondon.com
Address
T Bar Lounge
18 — 22 Houndsditch
Aldgate
London EC3A 7LP